Monday, February 23, 2015

Because everyone wants to see what you look like pregnant!!

In November 2013 we found out we were expecting baby #4.  I decided to make a fun count down shirt. The idea came from here. I really thought it would be a fun way to document my growing belly and I would take pictures often.   But not feeling well this pregnancy gave me no motivation to take belly pictures, especially once I got to 29 weeks. So here are the few weeks that I actually took pictures of.  I thought I started before Week 20, but I couldn't find any pictures before that.

Week 20




We also found out the sex of the baby this week!  The boys went to the appointment with us.  I thought they weren't paying attention to the ultrasound tech, but they were.  Since Kyla did not know we decided to surprise her.

At first she was disappointed, because she wanted to have another sister!
Week 23

This is my pregnancy is fun look!
Week 24


Week 29
And then we come to week 29.  I had a Doctor appointment this week and when my Nurse Practitioner measured me I measured like I was 35 weeks.  WOAH!  No wonder why I felt so huge.  She did a quick ultrasound and it showed I had excessive fluid, also known as Polyhydramnios.


Week 30

Week 33
This is the last picture I took during this pregnancy.  I took it in a Home Depot bathroom.  I was at Home Depot with Emmett and we were walking down an aisle and this man sitting at the front of the store tapped his friend and pointed at me.  I am pretty sure he was pointing at me, because there was nobody else in the aisle.  It really didn't bother me, yeah I thought how rude.  Emmett needed to go to the bathroom so I took him and as we walked in I looked in the mirror.  WOAH!  I looked liked I might have that baby in the store, I felt like it too.



I had another ultrasound by the tech to make sure that things were ok, to measure my amniotic fluid, and double check that I wasn't having twins.  Ok, maybe not that last part, but I definitely questioned it.  At this appointment I asked my Doctor if I should have concerns with the excessive fluid and see a High Risk OB.  He said no, since all my tests I had done previously looked good.  He measured my belly one last time and I measured 47 weeks.  What, 47 weeks!!  I told him I didn't think my belly could get any bigger and he assured me that it could and compared me to patients who were carrying twins.  I reminded him that was not funny and that I only had one baby.

I ended up back in his office Friday of that same week because I was having contractions.  He gave me a shot to help the baby's lungs if I went into labor early.  I went back in on Monday to get the second dose of the shot.  And then that Friday, which was the 13th, my water broke.  To read about Isaac's birth go here.

Monday, February 9, 2015

PICU....Round 3

Poor sweet Isaac.  He's back in the PICU.  He had been working harder to breathe the past couple days.  We had been giving him albuterol treatments and up until Saturday night it seemed like it was really helping.  We decided to take him to the Urgent Care at the Children's Hospital South Campus Sunday morning.  They could have probably admitted him at that campus and treated him there, but because of his history they would rather him be in the PICU at the main campus.  So, he was transported by the Flight for Life team, ground transport, to the Main Campus.  We are getting far too familiar with the Flight for Life team.
He has been put on BiPap, is on antibiotics, and tested positive for rhinovirus (common cold).  Sunday night was a very rough night in the PICU.  It seemed like he complained the whole night.  He definitely was missing his bottles, which is what gives him comfort.  He does not take a pacifier, so no help there.  They put in a feeding tube today.  I am hoping he will be able to have breaks from the BiPap mask and be able to take bottles during those breaks.
Of course he would get sick now as he was scheduled for his first Cranial Vault surgery this Thursday.  His surgery has been cancelled and hopefully will be rescheduled within the next month.

This was when we arrived at his room in the PICU



Tuesday, February 3, 2015

Isaac's First Hospital Stay

I realized I never posted about Isaac's first hospital stay in December.

On December 11, I was sitting on the couch giving Isaac a bottle, he was finished so he pushed it out and then stopped breathing. No gasping, choking, just stopped breathing. It was probably at least a minute. I picked him up, then placed him on his back, picked him back up and flipped him over and patted his back. He was kind of stiff, had turned blue / purple, and then he was back to his normal self like nothing happened. I called 911 as I was pretty freaked out. I have had him stop breathing for maybe 10 seconds, but nothing this long.  Emmett was home with me and he came over and was watching me.  He looked at me calmly and asked,"Is Isaac dead?"  "No, Isaac is not dead," I responded.  I could only imagine how scary it must of been for Emmett.  However, when our whole downstairs was filled with police, firefighters and paramedics he was like WOW!  Zane was out east working and I had called him and told him what was going on and he immediately came home.

Since Isaac was stable and showed no signs of distress we were able to drive him to the ER at the Children's Hospital South Campus.  The ER Doctor wanted us to hang out so they could observe him and see if he may need a CT scan.  So, we hung out in one of the rooms.  Zane left to take Emmett to preschool.  During that time I gave Isaac another bottle and he did the exact same thing that he did at home. I was glad that the medical staff was able to see the same thing I did.  The nurse had come in the room right before it happened.  I laid him down on the bed and she put the blow by oxygen mask on him.  His oxygen saturation had dropped into the 60's and wasn't really coming back up.  So she scooped him up and took him into one of the larger trauma rooms.  They gave him an IV, got him hooked up to oxygen and the ER Doctor ordered a CT Scan.  The scan looked good showing no fluid build up, which was the ER Doctor's concern. He was transfered to the PICU at the main Children's Hospital Campus. They tested him for RSV, which all came back negative.
   
Asleep in Daddy's arms.  This was the best way to keep him relaxed.  He just wanted a bottle at this point.

He ended up having two more episodes that evening in the PICU, one not following a feed.  He was then no longer allowed to have a bottle.  They put a feeding tube in and continued to keep watching him.  After a couple days he moved out of the PICU and onto the 9th floor, which is Pulmonary.  He had a barium swallow test done and an upper GI test done, which all looked good.  So, ultimately no one knows why he stopped breathing that day.  It's a bit frustrating to not know, but we also realize that there are probably going to be many times that we do not have clear answer as to why things happen in this medical journey of Isaacs.  He is on reflux meds now, twice a day.  I was definitely nervous every time I feed him after that, but he hasn't done it since.

Isaac checking out a new toy he received from new friends!

Isaac's favorite thing, pulling his nasal cannula out and licking it.

They put these restraints on Isaac to get him to stop pulling his cannula out! Ha!

  


He wasn't going to let those restraints stop him.

 Our Elf, Buddy, made a visit to the hospital to see Isaac.  The kids were unable to go see Isaac at the hospital due to visitor restrictions, so they were excited to see Buddy made it.







Since it was the month of December Isaac had a few visitors in the hospital.  The Colorado Avalanche were there handing out toys to patients one of the days he was there.  Our picture was on the news and on the Avalanche Facebook page.




This boy was so happy to get his bottle back.  He refused to let it go.
 This was the day police men (Cops 4 Cancer) came to hand out toys to patients at the hospital.  I happened to have gone downstairs to get something to eat when they were marching in the hospital.


Visit from a Christmas Bear.


And finally we were discharged after a week in the hospital.







Friday, January 9, 2015

Bye Bye Hospital!

Yay!  Isaac had an awesome night on the nasal cannula!  He has been discharged and we will be heading out of here!  Now, to keep our Hospital stays to surgeries only.




Thursday, January 8, 2015

It's a good day!

Isaac has had some really good days!  Yesterday they had him off oxygen several times and today he was off oxygen all day.  Last night they had him on CPAP and tonight he will just be on the nasal cannula.
If the nights goes well, he should be able to come home tomorrow or Saturday.

Zane took a video of him laughing yesterday!


I was able to take a selfie of us and got him smiling.  Oh I love that face!!



And I can't help but take pictures of him sleeping!


Tuesday, January 6, 2015

Improvement

Well, Isaac is doing better.  Yesterday he had 3 trials off the BiPap mask.  He was on a nasal cannula and did very well.  Here is a picture of him on the BiPap.


Today he has been on the nasal cannula all day and will be put back on the BiPAP mask for the night.  We are doing a trial, as I write this, with no oxygen.
I can tell he is feeling much better.  He is talking and playing.  I even think he said "Mama"!  Ok, well maybe not Mama, but very close ;-)!



Tomorrow we'll keep him on the cannula and maybe have more trials with no oxygen.  At night he will probably be put on CPap.  As long as he keeps doing well, they'll keep weaning his Oxygen therapy.

He even got to take a bath!  Yay!

The dang IV is in the way.  He hasn't needed the IV for several days, but they don't want to take it out just in case he were to worsen and need it.




Saturday, January 3, 2015

Moving Up!

 Isaac was able to move out of his suite in the PICU and up to the Penthouse today!
  
Poor Isaac has the flu, RSV, bronchilitis, and pneumonia.
On Wednesday morning he had a high fever, was so irritated with his BiPap, and getting continuous Albuterol that his heart rate was high.  They were giving him Tylenol and Toredol, but his fever was not breaking.  So, his nurse put ice packs on him and ordered a cooling blanket.  He was also given Ativan to calm him so his body could rest.  His fever went down and he fell asleep and his heart rate came down too.


Thursday, Zane stayed at the Hospital.  Isaac had a fairly good day.  No fever and in the evening they took off his BiPap mask and let him be on a nasal cannula for an hour.  And then of course the mask went back on and he became irritated.  The nurse kept asking Zane what comforts him and of course it's food, which they weren't ready for him to have.  The nurse tried to get him to take a pacifier but he knows it's not food.

I took Emmett to play glow in the dark miniature golf.
And he suckered me into letting him ride this car.


Friday, Isaac was able to be off the BiPap mask and on a nasal cannula three times for a couple hours each time.  He was able to take a bottle each time he was on the nasal cannula.


Saturday, they let him eat when he wanted, so he was on the nasal cannula almost every three hours.  In the evening we moved out of the PICU and into a room on the Pulmonary floor.  We do not know how much longer they want to keep him, but he is moving in the right direction.